There are many support groups for people with Klinefelter Syndrome as well as their family and friends. Some of these are listed here:
Recognise your feelings. It is natural for parents or family members to feel that they have done something to cause KS. But, remember it is a genetic disorder that occurs at random—there is nothing you could have done or not done to prevent it from happening. Allow yourself and your family time to deal with your feelings. Talk with your health care provider about your concerns.
Educate yourself about the disorder. It is common to fear the unknown. Educate yourself about the XXY condition and its symptoms so you know how you can help your son, family member, or partner/spouse. Use technology, such as Youtube videos to provide simple explanations. Online forums also provide the opportunity to talk amongst other sufferers of KS and are easy to access and free of charge.
Support your son, family member, or partner/spouse. Provide appropriate education about KS and give him the emotional support and encouragement he needs. Remember, most XXY males go through life with few problems, and many never find out they have the condition. It's important to remember that there are always options, and that science is continually researching and finding solutions to chromosomal disorders.
Be actively involved in your son's, family member's, or partner's/spouse's care. Talk with your health care provider and his health care provider about his treatment. If counselling for behavioural problems is needed, or if special learning environments or methods are needed, get help from qualified professionals who have experience working with XXY males. Please visit the sites that are listed on this page, and start to research the various options available, both with counsellors and medical practitioners and through the vast array of online resources.
Encourage your son, family member, partner/spouse to do activities to improve his physical motor skills, such as karate or swimming. Such physical activities not only increase motor skills, but also increase the ability to deal with stress, reduce long-term health problems and reduce the likelihood of depression and anxiety related to the disorder.
Work with your teachers/educators and supervisors/co-workers.
These are some of the problems that a KS patient may confront as well as the solutions:
- Klinefelter Syndrome Support Group Victoria Australia
- Andrology Australia KS Support Group
- IVF Australia Counselling & Support
- Beyond Blue Support Network for Depression & Anxiety
- Kids Helpline for Teens Depression & Anxiety
Recognise your feelings. It is natural for parents or family members to feel that they have done something to cause KS. But, remember it is a genetic disorder that occurs at random—there is nothing you could have done or not done to prevent it from happening. Allow yourself and your family time to deal with your feelings. Talk with your health care provider about your concerns.
Educate yourself about the disorder. It is common to fear the unknown. Educate yourself about the XXY condition and its symptoms so you know how you can help your son, family member, or partner/spouse. Use technology, such as Youtube videos to provide simple explanations. Online forums also provide the opportunity to talk amongst other sufferers of KS and are easy to access and free of charge.
Support your son, family member, or partner/spouse. Provide appropriate education about KS and give him the emotional support and encouragement he needs. Remember, most XXY males go through life with few problems, and many never find out they have the condition. It's important to remember that there are always options, and that science is continually researching and finding solutions to chromosomal disorders.
Be actively involved in your son's, family member's, or partner's/spouse's care. Talk with your health care provider and his health care provider about his treatment. If counselling for behavioural problems is needed, or if special learning environments or methods are needed, get help from qualified professionals who have experience working with XXY males. Please visit the sites that are listed on this page, and start to research the various options available, both with counsellors and medical practitioners and through the vast array of online resources.
Encourage your son, family member, partner/spouse to do activities to improve his physical motor skills, such as karate or swimming. Such physical activities not only increase motor skills, but also increase the ability to deal with stress, reduce long-term health problems and reduce the likelihood of depression and anxiety related to the disorder.
Work with your teachers/educators and supervisors/co-workers.
- Contact these people regularly to compare how he is doing at home and at school/work.
- When appropriate, encourage him to talk with his teachers, educators, supervisor, and co-workers. Suggest using brief notes, telephone calls, and meetings to identify problems and propose solutions.
These are some of the problems that a KS patient may confront as well as the solutions: